The Saudi Rare Disease Summit 2026 is a landmark event bringing together healthcare professionals, researchers, patient advocates, and policy makers to spotlight rare diseases — conditions that affect a small percentage of the population but require substantial multidisciplinary care and advocacy. This summit fosters knowledge exchange on diagnosis, management, and support strategies tailored to rare disease communities, particularly within Saudi Arabia and the wider MENA region.

Key Highlights

• Multidisciplinary Education: Sessions led by global and regional experts on rare disease diagnosis and treatment.

• Patient & Caregiver Engagement: Dedicated forums giving voice to patients and families.

• Policy & Strategy Panels: Discussions on rare disease policy development and national frameworks.

• Networking Opportunities: Facilitated interaction between clinicians, researchers, and patient groups.

Who Should Attend?

• Clinical geneticists and specialists in rare diseases

• Healthcare professionals and researchers

• Patient advocates and support organizations

• Policy makers and public health leaders

• Pharmaceutical and biotech representatives

• Caregivers and patients with lived rare disease experience

Main Event Features

• Scientific Sessions & Expert Lectures — Education on diagnosis and multidisciplinary care.

• Patient Advocacy Panels — Discussions highlighting lived experiences and community needs.

• Policy Roundtables — Collaborative sessions on healthcare strategy and national action plans.